Beantownbubba
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- CooleyGirl
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Re: Beantownbubba
Sending all of our love and prayers to all of you. We hate hearing this.
Jay Gonzalez - the Swiss Army Knife of Musicians - Patterson Hood
- Tequila Cowboy
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Re: Beantownbubba
A lot of folks have wanted to know what was going on with Bryan. Jeff maintains and posts to a Caring Bridge blog for Bryan so here's the link. You might need to go back a day or two
http://www.caringbridge.org/visit/bryanbernfeld
http://www.caringbridge.org/visit/bryanbernfeld
We call him Scooby Do, but Scooby doesn’t do. Scooby, is not involved
Re: Beantownbubba
BTB, much love to you and yours!
...a long day of improbable and grotesque mischief
- ramonz
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Re: Beantownbubba
My thoughts and prayers are with you and your family, BTB.
- Howlinwolf
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Re: Beantownbubba
BTB - stay strong brother - please know positive vibrations are heading your way from the concrete jungle.
- whatwouldcooleydo?
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Re: Beantownbubba
Oh hell, I just now saw this. Sending all the positivity and healing vibes your way, Jeff. As someone else said earlier, I hate it when bad things happen to good people
Son, this ain't a dream no more, it's the real thing
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Re: Beantownbubba
Just saw this after being at the Bryan's Bikers site. Positive thoughts headed your way up the east coast.
"to love is to feel pain there ain't no way around it."
Re: Beantownbubba
Jeff's post from Caring Bridge early this morning
I'm awake and there's absolutely nothing for me to do which is its own form of pain and anxiety. Bryan continues to fail slowly and it's starting to show up in the numbers. I talked to the nurse and we agree that he doesn't seem to be in pain so there's no need to up his pain meds but of course we're both just guessing. I don't know if I should wish that things would move faster or slower; at this point it's impossible to know or guess or intuit what bryan might want.
So I try to occupy mysellf w/ a somewhat interesting thriller and good thoughts and memories of bryan, which right now are dominated by one: The hugs he gave to me and MK in what may have been his last conscious moments yesterday. I will treasure that moment always. It also reminds me of how often in the past few weeks (before the last couple, I mean) bryan went out of his way to thank me and MK for our care of him and to express concern for our well-being. That's really how I knew that he was feeling worse than he was letting on and it was very typical of him: Not wanting to talk about "it" but also not wanting to be a burden or to have his illness dominate his or our lives. A bit unrealistic shall we say, but nonetheless appreciated.
We are getting a whole new perspective into the meaning of that much abused term, "surreal." We are very much in the moment and very much aware that our son is dying. And yet it's literally hard to believe that it's happening, it literally does not feel real. Maybe it's the slow motion aspect of it or maybe it's the mind's way of processing the incomprehensible. Very unsettling.
And then there's that hug...
I'm awake and there's absolutely nothing for me to do which is its own form of pain and anxiety. Bryan continues to fail slowly and it's starting to show up in the numbers. I talked to the nurse and we agree that he doesn't seem to be in pain so there's no need to up his pain meds but of course we're both just guessing. I don't know if I should wish that things would move faster or slower; at this point it's impossible to know or guess or intuit what bryan might want.
So I try to occupy mysellf w/ a somewhat interesting thriller and good thoughts and memories of bryan, which right now are dominated by one: The hugs he gave to me and MK in what may have been his last conscious moments yesterday. I will treasure that moment always. It also reminds me of how often in the past few weeks (before the last couple, I mean) bryan went out of his way to thank me and MK for our care of him and to express concern for our well-being. That's really how I knew that he was feeling worse than he was letting on and it was very typical of him: Not wanting to talk about "it" but also not wanting to be a burden or to have his illness dominate his or our lives. A bit unrealistic shall we say, but nonetheless appreciated.
We are getting a whole new perspective into the meaning of that much abused term, "surreal." We are very much in the moment and very much aware that our son is dying. And yet it's literally hard to believe that it's happening, it literally does not feel real. Maybe it's the slow motion aspect of it or maybe it's the mind's way of processing the incomprehensible. Very unsettling.
And then there's that hug...
Always go to the show
- bovine knievel
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Re: Beantownbubba
Fuck, Fuck, Fuck!
Much love and hugs for you and the Family.
Much love and hugs for you and the Family.
“Excited people get on daddy’s nerves.” - M. Cooley
- Tequila Cowboy
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Re: Beantownbubba
Jeff is as good a friend as I have in this world and I am fortunate to have a lot of those so that's saying something. My heart is broken for this family that has had so much fight in them for so long. Nothing but love for these brave, special and beautiful people at this unthinkable time.
We call him Scooby Do, but Scooby doesn’t do. Scooby, is not involved
Re: Beantownbubba
^^^^^^^^ truthTequila Cowboy wrote:this family that has had so much fight in them for so long.
For those who don't know, this is Bryan's fourth go around with Ewing Sarcoma. Four fucking times and the kid's only in his early 20's. Most people don't make it past round one or two, so that gives you an idea of what kind of fighter he is (and the whole family for that matter). My heart breaks for them.
If you don't run you rust
Re: Beantownbubba
RIP Bryan. So sorry, Bubba.THE CIRCLE OF LIFE
Bryan loved the Lion King, so it seems like an appropriate header.
Bryan died at about 12:40 pm on Sunday 16 August 2015. We removed his mask about an hour earlier and he died slowly, peacefully and painlessly surrounded by family. He went out to the strains of Jason Isbell's "Elephant," the best song I know about living and dying w/ cancer, and some selections from his favorite band, The Hold Steady, featuring fellow BC Eagle Craig Finn. Plenty of tears were shed and more than a few laughs were shared.
For the moment there doesn't seem to much else to say. I don't know anything about funeral arrangements at this point.
Thank you everyone for all your love and support throughout this ordeal.
If you're into symbolism perhaps you can find some meaning in the fact that the computer I'm using just died before I could hit send. The analogy only goes so far since it's a lot easier to resuscitate a computer but make of it what you will.
If you don't run you rust
Re: Beantownbubba
I wish I had something wise or eloquent to say but nothing can take away the pain that you and your family are experiencing. Please just know that my love and prayers remain with you all. I'm so very sorry.
I just want to stay in that better time and place....
Re: Beantownbubba
Lynne speaks for us all here.
- CooleyGirl
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Re: Beantownbubba
So sorry to hear this sad news. Much love & strength to all who knew Bryan.
Jay Gonzalez - the Swiss Army Knife of Musicians - Patterson Hood
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Re: Beantownbubba
Good Lord, Jeff. I am so sorry. I wish I had something better than that to say. Much love brother.
A single shot rifle and a one eyed dog.
- pearlysnaps
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Re: Beantownbubba
My heart breaks for you, Bubba, and for all who knew Bryan. You folks are in my thoughts and in my heart.
- pa_heathen
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Re: Beantownbubba
Our thoughts are with you and your family today. Our hearts go out to you.
When the lights came up we all went home but never quite the same.
Re: Beantownbubba
Jeff--condolences and love to you and MK and all of your family
Always go to the show
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Re: Beantownbubba
From what I could see Bryan was an incredible human being, the product of incredible parents. His spirit, attitude, whatever you to call it, lives on. Bryan's Bikers, lets keep it going.
Re: Beantownbubba
Sincere love and condolences Jeff.
From all us Sooners.
From all us Sooners.
- tinnitus photography
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Re: Beantownbubba
LBRod wrote:Lynne speaks for us all here.
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Re: Beantownbubba
My heart goes out to you and your family BTB. Rest in peace Bryan.
"to love is to feel pain there ain't no way around it."
- GW in IA
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Re: Beantownbubba
No fucking words...
Love from flyover country.
Love from flyover country.
Reluctantly, our hero rises to the day, with a moan and a curse to an absent God.
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Re: Beantownbubba
So sorry to hear this. Much love to you and your family.
"Guitars talk. If you really want to write a song, ask a guitar." Neil Young
Re: Beantownbubba
Terrible news, I only found out your son was ill a few days ago. Thinking of you and your family Bubba. Even though I'm across the pond, distance is nothing at times like this.
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Re: Beantownbubba
I am so sorry. May his memory be a blessing.
The sooner we put those assholes in the grave&piss on the dirt above it, the better off we'll be