Mrs. W in IA

one belt loop · Post by **one belt loop** » Wed Jun 01, 2011 1:08 am

Thinking of you guys, GW. xoxo

GW in IA · Post by **GW in IA** » Thu Jun 02, 2011 12:03 pm

Hey guys, just checking in. Internet is spotty at best here at the in-laws. Yesterday was a few early morning tests, then sent home for the rest of yesterday and today. Lots of blood work, an EMG, and some test involving sticking small needles directly into her muscles. I guess today we are just hanging out at grandmas, and waiting for our consultation tomorrow. (3:45). Mayo Clinic is a beautiful place, and very easy to navigate. Wish I had some news, but nothing really. Just wanted to say hey, and thanks again for all your thoughts.

beantownbubba · Post by **beantownbubba** » Thu Jun 02, 2011 12:04 pm

GW in IA wrote:Hey guys, just checking in. Internet is spotty at best here at the in-laws. Yesterday was a few early morning tests, then sent home for the rest of yesterday and today. Lots of blood work, an EMG, and some test involving sticking small needles directly into her muscles. I guess today we are just hanging out at grandmas, and waiting for our consultation tomorrow. (3:45). Mayo Clinic is a beautiful place, and very easy to navigate. Wish I had some news, but nothing really. Just wanted to say hey, and thanks again for all your thoughts.

Thanks for the update, GW. We're all thinking of u and waiting it out w/ you.

Post by **Tequila Cowboy** » Thu Jun 02, 2011 12:15 pm

GW in IA wrote:Hey guys, just checking in. Internet is spotty at best here at the in-laws. Yesterday was a few early morning tests, then sent home for the rest of yesterday and today. Lots of blood work, an EMG, and some test involving sticking small needles directly into her muscles. I guess today we are just hanging out at grandmas, and waiting for our consultation tomorrow. (3:45). Mayo Clinic is a beautiful place, and very easy to navigate. Wish I had some news, but nothing really. Just wanted to say hey, and thanks again for all your thoughts.

Thanks buddy, appreciate the update. You guys are in my thoughts every day. Positive vibes are aimed squarely at Rochester, MN today.

Erdlivz · Post by **Erdlivz** » Thu Jun 02, 2011 1:06 pm

Thanks for the update GW. Thinking about y'all everyday!

Lurleen McQueen · Post by **Lurleen McQueen** » Thu Jun 02, 2011 2:06 pm

Erdlivz wrote:Thanks for the update GW. Thinking about y'all everyday!

x2

lynne · Post by **lynne** » Thu Jun 02, 2011 6:16 pm

Thanks for the update also. You have been on my mind all week. Keeping lots of positive thoughts for you and your family!

The Black Canary · Post by **The Black Canary** » Fri Jun 03, 2011 8:36 am

lynne wrote:Thanks for the update also. You have been on my mind all week. Keeping lots of positive thoughts for you and your family!

X2

Lurleen McQueen · Post by **Lurleen McQueen** » Fri Jun 03, 2011 10:40 am

Thoughts and prayers floating in the airwaves between the Dirty South and Mayo this morning.

Post by **CooleyGirl** » Fri Jun 03, 2011 1:26 pm

Lurleen McQueen wrote:Thoughts and prayers floating in the airwaves between the Dirty South and Mayo this morning.

Also coming from CT this afternoon. Thanks for the updates, much appreciated! We're all hoping for the best for you.

GW in IA · Post by **GW in IA** » Fri Jun 03, 2011 10:17 pm

Well kids, wish there was somthing else I could say. Mayo Clinic agreed, looks like ALS.
We were pretty well prepared for this, as none of our previous Dr.s showed any doubt, but still, its a blow everytime.
Due to her age, (37) and good overall health, she seems to be a shoe in for a new experimental drug trial starting later this month.
I know she has been wanting to chime in here for a long time,but not sure she knows what to say. Just know that she has seen every post, and knows you are all pulling for her.
I'll catch up a little more later.

Post by **Tequila Cowboy** » Fri Jun 03, 2011 10:24 pm

GW in IA wrote:Well kids, wish there was somthing else I could say. Mayo Clinic agreed, looks like ALS.
We were pretty well prepared for this, as none of our previous Dr.s showed any doubt, but still, its a blow everytime.
Due to her age, (37) and good overall health, she seems to be a shoe in for a new experimental drug trial starting later this month.
I know she has been wanting to chime in here for a long time,but not sure she knows what to say. Just know that she has seen every post, and knows you are all pulling for her.
I'll catch up a little more later.

So sorry GW. I don't have the words, but I'm (like every one else here) behind you and Patty every step of the way. All my thoughts.

Lurleen McQueen · Post by **Lurleen McQueen** » Fri Jun 03, 2011 10:36 pm

GW in IA wrote:Well kids, wish there was somthing else I could say. Mayo Clinic agreed, looks like ALS.
We were pretty well prepared for this, as none of our previous Dr.s showed any doubt, but still, its a blow everytime.
Due to her age, (37) and good overall health, she seems to be a shoe in for a new experimental drug trial starting later this month.
I know she has been wanting to chime in here for a long time,but not sure she knows what to say. Just know that she has seen every post, and knows you are all pulling for her.
I'll catch up a little more later.

Well, I am so sorry to hear that the diagnosis was confirmed, but hopeful about the experimental drug trial. There just are not enough words - or maybe I just can't find them - to tell you how much I wish y'all didn't have to face this. We are all going to be here for you as best we can - we're a rough and rowdy crew, but we've got big hearts and they are with the W's tonight.

beantownbubba · Post by **beantownbubba** » Fri Jun 03, 2011 10:58 pm

{{{ G & Mrs W }}}

lynne · Post by **lynne** » Fri Jun 03, 2011 11:14 pm

I too am very sorry to hear that the diagnosis has been confirmed. Please know that you and Patty remain in my thoughts and prayers. Her age and overall good health is a positive and I hope with all my heart that the experimental drug trial is able to help.

Smitty · Post by **Smitty** » Fri Jun 03, 2011 11:20 pm

beantownbubba wrote:{{{ G & Mrs W }}}

x2

lajakesdad · Post by **lajakesdad** » Fri Jun 03, 2011 11:28 pm

beantownbubba wrote:{{{ G & Mrs W }}}

X3

Never lose faith

Post by **CooleyGirl** » Sat Jun 04, 2011 8:34 am

Shit. I was really hoping they would be wrong. I'm glad to hear there is an experimental drug, though, that sounds promising. My love, faith, prayers and heart go out to you and your family. If you need anything at all, don't hesitate to ask. Geez, I just turned 37 myself a few days ago, I just can't imagine what you're going through, I'm so sorry.
Positive thoughts, though, you are not alone, you've got all of us Heathens with you!

Clams · Post by **Clams** » Sat Jun 04, 2011 8:37 am

I think about you guys every day...

I hope you have some success with that drug trial. Hang in there.

one belt loop · Post by **one belt loop** » Sat Jun 04, 2011 10:38 am

Just wanted to chime in with my best wishes and thoughts for you all. I wish there was something magical I could say or do that actually helped. I'll be keeping you in my thoughts.

sg207 · Post by **sg207** » Sat Jun 04, 2011 10:41 am

My thoughts have been with you all week, and will continue to be. While this news is discouraging, I'm hoping for the best with the new drug. Please keep us in the loop, and hang in there best you can.

njMark · Post by **njMark** » Sat Jun 04, 2011 11:26 am

Damn I can't think of anything to say other than I really hope things come out okay for you guys. The bestest best of luck any wishes for ya.

Erdlivz · Post by **Erdlivz** » Sat Jun 04, 2011 3:08 pm

I'm thinking about and wishing the best for you all. I really hope the experimental drug trial has great success.

The Black Canary · Post by **The Black Canary** » Sun Jun 05, 2011 1:50 am

So sorry that the diagnosis was confirmed. Please know that you and yours are in my thoughts and prayers. Wishing you all the best with the treatment.

Smarty Jones · Post by **Smarty Jones** » Sun Jun 05, 2011 6:50 am

Hey, Mrs. W in IA!

Just wanted to let you know that you have been in my prayers every night and will continue to be as you and your family work through this horrible diagnosis. Wake up every morning determined to stay on the positive side of things. Right now, the positive side is that you've still got the experimental treatment to try, which I hope and pray goes well with you. Stay strong, girl!

Slipkid42 · Post by **Slipkid42** » Sun Jun 05, 2011 7:54 am

I'm very sorry to hear that the diagnosis has been confirmed. I hope that the experimental drug you speak of, can provide you guys w/a remedy. My thoughts are with you & I am sending positive vibes your way.

Post by **Jonicont** » Sun Jun 05, 2011 2:30 pm

Is it a trial where she actually gets the drug, or is there a placebo arm?

GW in IA · Post by **GW in IA** » Sun Jun 05, 2011 5:19 pm

Jonicont wrote:Is it a trial where she actually gets the drug, or is there a placebo arm?

She has a 50/50 chance of getting the drug vs. getting the placebo. 12 to 18 months.

The Drifter · Post by **The Drifter** » Sun Jun 05, 2011 9:12 pm

Gary - As others have already said, I'm sorry that the diagnosis was confirmed. You guys have been in my thoughts every day. As far as the experimental treatment is concerned, that does sound promising and something to be optimistic about. Even if she gets the placebo, if the drug is successful for others, that is something to still be optimistic about in the future. I'll continue to send positive thoughts your way. We love you guys.

pearlysnaps · Post by **pearlysnaps** » Thu Jun 09, 2011 11:11 am

Shit man, so very sorry to hear the confirmation. You, your mrs. and your family are in my thoughts buddy. Fingers crossed for that med to work.

Mrs. W in IA

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